I learned about Jennifer and Stellan a few days ago, and that sweet little boy has been on my mind since then. Jennifer’s beautiful blog, My Charming Kids, is actually one of the first mom blogs I ever came across seven months ago when I started my blog, but I hadn’t checked in until a tweet by another mom caught my attention.
Stellan, one of four, is her nine-month-old adorable little boy who has heart failure, and Jennifer blogs about their difficult and heart-breaking journey every day. More than 17,500 people follow her tweets. Over 2,000 blogger have added a Stellan twibbon to their Twitter pictures.
As a mom of a little boy, I find myself glued to Jennifer’s tweets and her blog. I can’t wait to read Jennifer’s entries but am literally scared to push the refresh button — too scared to read more bad news, or worse. A few nights ago it was touch-and-go for hours, and I fought the tears with every update. I can not imagine having to go through what Jennifer and her family go through, so close to losing Stellan at any moment.
I don’t pray much, but I have been praying for Stellan every day. I don’t cry much, but I have been crying for Stellan every day — it makes me cry to see my healthy boy when I think of Stellan, and I cry when I see pictures of Stellan and think of my healthy boy.
I don’t know this little boy or his family, but he has captured my heart as if he were my own. I’ll never think of Landon’s health or life the same after this experience — not that I have ever taken Landon’s health for granted.
My biggest worry every day are Landon’s cavity issues, but they become trivial real quick when confronted with health issues of Stellan’s magnitude. Life is so fleeting and unpredictable — Stellan’s story is a good reminder not to forget that for a moment and to wrap our arms around our children as often as we can. I will.
Stellan, hang in there, little guy, a lot of people are sending you buckets of love. I pray you get the treatment that will allow you to have a normal, happy, healthy life. Jennifer, you are a brave woman, bless you.
Update: I’m elated to report that as of November 9, 2009, Stellan’s SVT, his fast heartbeat, has been fixed during a risky operation called an ablation in Boston! You can read about it here. Yay, little Stellan and Jennifer, I couldn’t be happier to hear those news. Your birthday is just one day before Landon’s birthday, maybe that is why I feel so close to this little man.